What forgiveness does not mean…
What forgiveness does not mean…
This month many people are focusing on physical fitness and/or getting more active as May is National Physical Fitness and Sports Month. Even though it’s an ongoing thing for me, I’m geeked up too. Continue reading Fine by 50!
April is poetry month, ya’ll…
The soreness of my chest – a reminder of the birth of womanliness. Momma says they’re growing. It’s like your wisdom teeth busting through – painful and itchy. Continue reading Womanliness
Alcohol can be a good thing. There’s a scripture in the Bible that even says: A feast is made for laughter, and wine maketh merry: but money answereth all things. Admittedly, I’m no connoisseur, meaning I’m a 100% juice kind of gal. But after accumulating some life experiences, I have seen firsthand how alcohol can go from a good thing to a bad thing. Continue reading When Alcoholism Touches Home
Let’s all face it. Getting older sucks! Sometimes. Okay, Imma tell you what I mean. When I was 22 years old and I had a pain in my patooty, colon cancer would not have come across my mind. I would have just thought, well, I gotta go take a dump. Continue reading Colorectal Cancer Awareness
Earlier this week, so many people were outraged when THAT Polish politician ignorantly declared that women must earn less because they are weaker and less intelligent. Okay, admittedly, I wasn’t even mad because his statement is so ridiculous that it made me laugh. Who in their right mind would take him seriously??? Continue reading Women History – We Did That!
So 2016 is like so over, she said in her best Valley Girl voice, but I still wanted to post about my favs in cinema. Now while I didn’t get to see every movie I wanted to see (Queen of Katwe comes to mind), I wanted to take time to pay homage to 2016’s special 9, especially since tonight is Oscar night. Hey, the Academy has theirs and I have mine. Continue reading Nine Movies I Loved in 2016
During Black History Month, we normally look to others who many times are so far removed from us personally – through time or distance – pointing to them for outstanding sacrifices. Remember the pictures of the Little Rock Nine in 1957 who were the first to integrate Little Rock, Arkansas’ Central High School? They could only attend the high school after President Eisenhower himself intervened by sending troops no less. Or, I always remember the picture of little Ruby Bridges coming down the stairs of William Frantz Elementary School in Louisiana, in 1960. She too was flanked by the law, U.S. Marshals.
I used to wonder, where in the world did those people get the strength, the audacity to send their child into that kind of situation? It seems so far removed, so far away. Imagine my surprise when I learned that in my own family, there were acts of heroism so close that I could touch it. Seems that I have a second cousin that broke down barriers as well.
In the small town of Olive Branch, Mississippi, she broke the racial lines by being the first African American to attend the all-white high school there during the civil rights period. Wow. The fact that I am just learning of this event in my family history makes me proud and sad at the same time. This is what happens when we don’t keep up with our own personal history or legacy. We need to know these things because these are the things that make us the people we are and that have the power to shape us into people we can be.
The lesson? Black history is about each of our own personal, familial, and communal histories. Let’s be eager students and perpetual protectors. Let’s pass on our histories by doing what our ancestors did – talking to our children by means of oral traditions thereby never letting our stories die.
For most of us, we never think about a thing until it becomes a thing. You don’t think about homelessness until you’ve faced foreclosure or you never think about what’s really important in your life until you have a near-death experience.
Welp, I’m no different. I never thought about rare disease until it affected me personally. I’m not going to talk about the plethora of doctors’ visits, stupid questions from said doctors, dead ends, and sheer exhaustion I endured all while trying to find out what was wrong with me. When I finally stumbled upon the answer years later, I found that there was no cure for my condition and it was considered a rare disease.
Definition: A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000.
A disease or disorder is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time.
I can only manage the symptoms – most of the time. After my initial elation due to discovering what was ailing me, the real work began. In the end, it’s just like dealing with any other long-term illness, you have ups and downs and good days and bad. On the other hand, it has made me an advocate for Rare Disease. While more well-known diseases like diabetes and cancers get money thrown at them all the time, rare disease funding is slow. I’m guessing it’s because of the number of people affected are low in comparison to other diseases. But you know, just because fewer people are affected doesn’t mean the disease isn’t just as debilitating or even crippling to its victims.
To learn more about rare diseases, Rare Disease Day, or even how you can help, please visit Rare Disease Day USA at http://rarediseaseday.us/.